Ava's video EEG was very helpful.
*It confirms that much of what Matt and I are calling seizures or seizure activity are, in fact, seizures.
*It also revealed that our sweet Ava Bean is having many more seizures that are going undetected.
*This allows us to make more informed choices about medication and possible future dietary changes.
After a 2 1/2 hour meeting with Ava's epileptologist, we have a bit of a road map for how we'll try to get ahead of and control her seizures, and we also have a better idea of the developing picture of Ava's brain development. Today we'll talk with Genetics and she'll get a lumbar puncture as well as some other blood tests. We'd thought we might go home tonight, but she had a pretty busy night and morning as far as seizures go, so that may or may not get to happen.
Of course no one knows for sure what the future holds. And honestly, there's mercy in not having the whole picture revealed to us now. However, we do know that right now, Ava's brain needs to "cool off" so she can develop. At this point, she pretty much like a newborn developmentally, so she deserves some seizure-free time to see what her brain can do when it's left alone for a while. We so appreciate your prayers that this would happen sooner than later.