Blog Archive

Friday, March 22, 2019

Happy Heart 2.0 Anniversary!

A year ago, we were running through the snow to catch a cab to the hospital, so world renowned surgeons could reconstruct Elizabeth's heart. 


She was out of the ICU in under 24 hours and discharged 1 week later! Happy Heart-2.0 Anniversary Elizabeth!! 365 days later, we're on the second of a two-day marathon of liver transplant evaluations. The road ahead is still unclear, but how could we not laugh at the days to come, when God has such an awesome track record of faithfulness??


Tuesday, March 12, 2019

Listed

Welp, it's official. Elizabeth is on the liver transplant waiting list.

So now we do what the list tells us to...we wait!

Yet even as we wait and look to doctors, we don't want to forget that we have a God who heals! Chronic illness is its own version of Chinese water torture. At times, hope differed, discouragement and despair threaten to snuff out any flame of hope and faith for the possibility of Elizabeth's physical healing. But even as we have heard, "not yet" countless times, we continue to ask for her body and all of its broken parts to be made whole this side of heaven. Would you join us?

We're so thankful to be at a world class hospital, but we're sobered by the reality that a transplant is not a lifelong fix. We can get lost in the weeds if we try to look too far ahead, so instead we fix our hearts and minds on our true Source of peace. A thousand times a day, we remove tomorrow's concerns from today's playlist and live in today's provision:

While as we explore living donor options for Matt, the team is continuing to leave no treatment option unexplored. So today we're taking a look at the possibility of a non-surgical approach to shrinking the tumor. More appointments, more blood draws, more waiting, still no concrete next steps.

And yet..His grace is truly, amazingly, profoundly sufficient. A friend brought her kids over and is doing school with Ruby & Hannah at home. E and I snagged some treats between appointments at the Hospital Safety Fair...(hey, you grab fun where you can!) and then we had a little bit of quiet reading time at the library near the hospital and I got to close my eyes and rest for a few minutes in the sunshine streaming through the window. (Sweet and simple pleasures!) Now we're finishing our last appointment and will head home in a bit. Still no clear answers, but lots of clear and present peace.

Thank you for your prayers friends. They are a gift. 💗