Sunday, December 14, 2008
Her current favorite person in the story is Mary, who has a ponytail, so Elizabeth wants a ponytail. The shepard has a staff, so Elizabeth spends some time everyday walking around the house with a broom as her staff. She does remember an amazing amount of detail about the story though, and I'm humbled by how much she absorbs and how much we are writing on her heart already.
We picked out a beautiful chistmas tree and both both girls love seeing the lights.
Since Elizabeth's health is so stable, we are thrilled that we get to fly to California for the holidays. We'll be with ALL the Harms family for Christmas and some of the Peterson clan for New Year's so we are counting the days until we get on the plane!
Tuesday, November 25, 2008
& Elizabeth Joy
Thursday, November 13, 2008
Wednesday, November 12, 2008
morning to check out her varices. (to review, last winter they were the
most severe, Grade 4, then this summer they'd improved to Grade 3) We
had an ultrasound on Tuesday that went off without a hitch. Everything
appears to be stable and when we had to get a blood draw afterward,
and didn't cry for one single minute! She actually told the
phlebotomist which arm to stick, counted down and then asked for a
bandaid and a sucker...next she'll want a bike and a kitty! :)
Afterwards, we went to the hospital cafeteria for an "ice cream with
Daddy date." It's our new ritual and I believe it kept her from
totally freaking out the whole morning...she was so focused on the
Unfortunately, she's been acting a little strange. That, coupled with
some abnormal lab results, has us concerned. We're in conference with
the on-call Gastrointerologist and really need wisdom and discernment
about what to do. We've almost made it through the entire fall without
a hospitalization...only a few weeks left. We'd really like to stay
home with a healthy Elizabeth tonight.
We'll keep you posted.
Here's a photo of Elizabeth celebrating Dora the Explorer's 3rd Birthday.
Monday, November 3, 2008
Thursday, October 30, 2008
Sunday, October 26, 2008
This afternoon went to the pumpkin patch at Eckert's Farm in Illinois. It was a gorgeous fall day and we had a fantastic time watching the "pumkin lobber" shoot pumpkins into the orchard, cheering at the pig races, "go Hamma Montana!", feasting on corn dogs, pulled pork and fresh apple cider and taking a tractor ride through the apple orchards to pick out pumpkins. (actually, don't tell the girls, but we left the pumkins in the field and picked out small ones on our way out.)
Thursday, October 16, 2008
Tuesday, October 14, 2008
Our Dear Little Bug,
What a wonder you are! Three years have passed sine we first laid eyes on you, and I it has been the joy of our lives to spend each day with you. We had no idea how quickly you would fill our hearts to overflowing with love, joy, and delight. We are amazed at how hard you fight to overcome every challenge you face, how easily you receive people into your heart, how thoroughly you desire to please us and how easy you are to love. God has blessed us abundantly. We love you dear one. Happy Birthday!
Love, Daddy & Mommy
Wednesday, October 1, 2008
We made it through September and Elizabeth is as healthy as she's ever been. Praise God! I'm sorry we haven't updated you sooner...it's just been too busy around here. Elizabeth had a fantastic month. She's eating all of her food by mouth now, mostly purees that I spoon-feed her. While chewing is still not instinctive for her, she's making steady progress in that area too! She's jumping, running and climbing small stairs without hand support, she cracks us up constantly with her little sayings. Tonight after falling down, she said "Mommy, that scared me. I screamed like a girl!" Finally, she's potty-training! I guess these kinds of milestones are possible when one stays out of the hospital for more than 6 months! My mom will arrive next week to help us celebrate Matt's birthday on the 10th and Elizabeth's 3rd birthday on the 14th. It's hard to believe we've come so far.
Ruby continues to delight us as well. She'll turn one after Thanksgiving and she is most happy when she's rolling around on Elizabeth's bed, chewing on Elizabeth's blanket...pretending to be Elizabeth, I guess. We're truly thankful that the two are so enamored with one another and frequently hear giggles coming from the back seat, bedroom or high chairs as they look at each other and laugh at nothing in particular.
We hope you're enjoying the changing of seasons wherever you are, and appreciate your continued prayers for our family.
Tuesday, September 30, 2008
Wednesday, September 3, 2008
We had a fantastic time at Grant's Farm to support the Jerry Lewis Telethon on Monday. Last year when we went, Elizabeth wasn't walking and Ruby was still a bun in the oven; Elizabeth wouldn't get near the goats in 2007, but this year, she couldn't get enough! What a difference a year makes.
Tuesday, August 26, 2008
Monday, August 25, 2008
Wednesday, August 20, 2008
Wednesday, August 6, 2008
I know I just sent out an email a few months ago with the miraculous news that she was eating again...what happened?? Well, that has not changed, she's still taking lots of pureed foods by mouth. but we've been struggling to get the volume we need into her since she needs 1200 calories per day to stay on her growth curve. (staying on the growth curve delays the need for daily growth hormone injections...a task her mommy isn't looking forward to) AND it's not helpful to be trying to teach her to chew (one cheerio at a time...for a grand total of 15 in a half hour!), while also trying to get her to take a lot of pureed volume...they're sort of mutually exclusive goals. As a result, we've brought in a dietician who is helping me design a blenderized diet (high calorie, low volume) and I've ordered a cookbook to help in the process. I'm focusing on providing E with positive interactions with food and preparing her blendrized meal, and taking a break from being her feeding therapist for a few months...we'll leave that to Mary.
The good news is, in the week since, E has really blossomed and is seeming more relaxed about meals, I'm less frustrated and we're having some really enjoyable experiences around food. That's an aswer to prayer.
Here are a few videos of our girls...They are simply delightful. The first is of Elizabeth playing Mommy to her doll. She aparently learned from watching me, because I've never taught her to do that.
After I clipped Elizabeth's nails, she wanted to use the clippers and went directly for Abby's nose. I'm not sure she gets the idea yet. Ruby's full of chatter these days, she's signing "more" and clapping and waving and might be trying to sign "all done" not sure on that one yet. We're having lots of fun.
Tuesday, July 29, 2008
It's nice to be home. We had a fantastic time in California. Both girls were healthy the entire time and the flights to and from were uneventful (if you can call schlepping 2 little ones across the country with everything they might need in a 6 hour period stuffed under the seat in front of you "uneventful") Thank you for your prayers for our trip...it was a resounding success and we can't wait to do it again. I'll post a few more pics of cousin camp when I get things together. A grand time was had by all. Until then, we're enjoying getting resettled in our home and the girls are re-exploring their "hood".
Sister Time on the Rug
Making Ruby Laugh
Ruby's Post-nap Hairdo
Ruby is itching to crawl, and I'm convinced she's started saying "Mama." We won't get to document it in her baby book until Matt's on board, but needless to say, it will be soon, I think. She's over 22 lbs now and LOVES to laugh. We get such a kick out of her easy going,
Elizabeth had a round of labs as soon as we got back, and they showed that while still high, her ammonia is coming down, so we'll continue to watch it and confir with her doctors. She's got an appointment with the feeding clinic here at St. Louis Children's Hospital tomorrow so we're praying that this therapist has some new tricks up her sleeve. Granna taught her some sight words while on the plane back from California and she LOVED spelling, so we continue to play lots of word games, along with her daily diet of signing and reading. She loves drawing pictures for people & right now she's fixated on "Auntie Julia", Matt's sister, and "Benjamin" our friend in California.
Matt's job is going well and we're beginning to look down the road a little and (gasp) think about that light that's been at the end of the tunnel that we're going to be reaching soon...