Blog Archive

Monday, February 20, 2012

Still in the fight!

Ava made it through the weekend without any more bumps in the road. She did all the things we wanted to see her do for her sleep study, so hopefully when the report is issued, they can give us more clarity as to the underlying cause of her breathing trouble.

Since then, though, she's been much sleepier. While this actually makes breathing easier for her, it's not encouraging sign. It might be the effect of her UTI, but it could also be the progression of her brain problems. It makes us all the more eager to get started on her steroids! This afternoon we finally got negative cultures...which is actually POSITIVE news to us....that means her infection is being treated, so we can begin steroids this evening! Please pray that she has no negative side effects from the high doses she'll be receiving, and that this has a positive effect on whatever is going on in her brain.

Along with steroids comes another keep her healthy, smack dab in the middle of cold and flu season...oh and don't forget RSV! Her immune system will be suppressed so we need to keep her well. However, Elizabeth slept all day (till 3pm!!) which means she's likely coming down with something, Hannah has a runny nose and Matt's feeling worn down. Anyone who's sick can't visit Ava and even bringing her home becomes riskier. Will you pray for wellness for our entire family and Miss M?

"Don't be afraid, I've redeemed you.
I've called your name.
You're mine.
When you're in over your head, I'll be there with you.
When you're in rough waters, you will not go down.
When you're between a rock and a hard place, it won't be a dead end--
Because I am your god, your personal God"
-Isaiah 43 (The Message)

1 comment:

fearGD said...

we are still in the fight with you... prayer warriors forever.. Natalie (8) is especially concerned for Ava..God will be Glorified ...hugs to all... from Kellie B.