After waiting all day for Ava's MRI, we then waited for the Pediatric Neurologist to look at it, and then waited some more for the Neurologist and the Fellow to discuss it, and finally, for Matt to walk over from work so we could go through it together. We are so sad to share that the results are not what we were hoping for. The brain injury that was visible on the first MRI prior to Ava's surgery, is still visible, and has not improved now that her brain is not squished. We can't know exactly how this will impact her development, but in her recent exams by the Pediatric Neurology team that sees her every day, she is showing signs that point to early cerebral palsy.
We are, of course, so sad. We would, of course, dearly love your prayers and support. We are simply too overwhelmed to look to far down the road and ask all the "what if's". We still need daily grace for the hospital/home routine. We still need daily wisdom to know how to meet Elizabeth's needs. Elizabeth starts Kindergarten on the 15th and we need to wrap our brains (and my heart) around that. In each of these things, we can only cling to God and rely on his faithfulness one moment at a time.
We are, of course, so sad. We would, of course, dearly love your prayers and support. We are simply too overwhelmed to look to far down the road and ask all the "what if's". We still need daily grace for the hospital/home routine. We still need daily wisdom to know how to meet Elizabeth's needs. Elizabeth starts Kindergarten on the 15th and we need to wrap our brains (and my heart) around that. In each of these things, we can only cling to God and rely on his faithfulness one moment at a time.
He has not changed.
He is good.
We can trust Him.
May God get glory from even this.
5 comments:
I am so sorry. Will continue to pray for you all.
Hi Sarah, it's Jenn, Mimi's daughter. I've been following your blog for a while now. I am so sad to hear this news of Ava's MRI. She is a beautiful little girl, as are all of your girls. Your blog is such a testament of your faith. Seriously, it's inspiring. Thank you for sharing your journey. I will be praying for your family.
Dear Sarah! I have been following your family's story and have been challenged, encouraged and inspired! Thank you for sharing your pains and your joys so openly.
May Jesus give you strength for each day and may his grace enable you to do daily things. May your hope persevere as you trust, and may your good intentions for your babies come to pass. And we will rejoice! Our God cares!
Ava is very sweet. I love her smile. Will continue to pray for her and her little head.
Love to you and hugs.
Alyona
Hi Sarah, I don't know if you remember, but my brother was also born premature at 26 weeks, and had a shunt. He was one of the lucky 1% who was able to have his shunt removed when it stopped working. I remember the time spent in the NICU and calling every hour to see what his latest weight was. Remember you are not alone. Scott has had his struggles but he is a survivor and surprised all of us. He just graduated from Fresno State. Unfortunately all you can do is wait and take it one minute at a time. Thinking of you and wishing you and your family all the best.
Julie
Jenn & Alyona thank you for your kind words and faithful prayers. Julie, I didn't remember about your brother. Thank you for sharing! You're right about living one moment at a time, by the grace of God.
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