New Day, New Mercies

This girl. What a rockstar! The two of us had a pretty rotten night. There was some confusion about her regimen, so she got behind on her pain meds, and as a result woke up every 30 minutes anxious, thirsty and in pain. She developed a low grade fever and we couldn't help but worry about a possible infection or developing pneumonia.
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All I can say is, Praise God for mornings!
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The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness.
~Lamentations 3:22-23
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This morning we were able to make some changes during rounds. Best of all, that means better pain management! We also have a super competent nurse and a support squad that arrived throughout the morning with coffee, snacks, hugs, lunch, some laughs, more coffee and prayers! As a result we got a pretty uncomfortable IJ Line removed, managed to get her up and walking...2 1/2 laps so far🙌🏼🎉...and then she sat up for 2 hours! As a reward for all that hard work, she got to introduce her OT to The Greatest Showman. 😍
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She's looking forward to hosting her sisters for dinner again, and we're even beginning to believe we might be home by Easter...what grace.
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Thank you so much for your continued prayers. As you can tell, there are lots of highs and lows and big swings between pain and comfort. This journey is not for the faint of heart, so it's a good thing our Joy-Child has a strong one! 💗💗💗