Blog Archive

Wednesday, March 28, 2018

Holding Steady

Elizabeth's chest tube drained nearly 400ccs overnight and through the morning and her early morning chest X-ray showed that her fluid pocket was about 50% improved! So since her tube was finally working, they left it in for another day, and in the early afternoon it appeared that the drainage was done! We'll know for sure after the X-ray tomorrow morning, but we're hopeful that she could get her tube taken out tomorrow! 

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This pushes back discharge a bit, but we still have Easter at home in our sights. 💗 Meanwhile, she's lost 9 pounds and is pretty wiped out, so pray that her lack of appetite and lethargy are simply the result of that pesky tube and the heavy diuretics! We're certainly happy to fatten her back up at home if they let us take her! 💗

While E has been laying low, her sisters have been having precious time with my mom all last week, and now Matt's mom. They've been doing school, sewing, making cards for E, and enjoying the sweet care packages friends have sent. I'm so glad they have each other and such attentive, intuitive grandmothers. Their hearts are also weary of the long separation, but everyone seems to be doing well and I'm proud of the way they are handling it. They've both expressed a desire to spend more time in the Hospital with E, (free snacks from her untouched meal tray, the child-life play room are a big draw!) so we've had the chance to play lots of games and process how their hearts are doing. One day at a time, we're doing it! 

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We are incredibly humbled by the amount of support and encouragement, the meals and coffees and offers to visit, the notes and gifts, the prayers and expressions of love...were overwhelmingly thankful.  💗








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