Blog Archive

Saturday, October 22, 2011

Ava's MRI looks stable. The bottom line is, her hydrocephalus and shunt are not the cause of her seizures.

The results from Ava's EEG are not good. Ava has seizure activity all over her brain.

Our sweet little bean has epilepsy.

I couldn't write the words last night. I hoped that in keeping them out of print, I could make them untrue. But then I remember that it is God who determine's her function...God who created her and God who knows every hair on her sweet little head. This is not a surprise to Him. Still, as we are anytime our little ones suffer...we're sad.

We'd hoped to come home today, but Ava's had two lengthy seizures and thrown up most of her feedings, so they've given her a muscle relaxant and are changing her medication, and we'll remain here tonight. She'll need to be awake and alert, (eating normally) and not having seizures before we can go home. Right now she's not having seizures, but she's been asleep for most of the day.

I got to spend some time catching up with a NICU friend this afternoon, which was nice. Her daughter Aleaha, is Ava's little friend. Aleaha just had open heart here we all are again...taking things moment by moment, only by the grace of God.

1 comment:

Kimberly said...

Oh, precious family, you are in my prayers.