Blog Archive

Sunday, April 22, 2012

Ava Holding Steady

As I go to bed tonight Ava is comfortable in her bed, hooked up to her pulse oximeter and her feeding tube. An alarm will sound of her oxygen levels dip or her heart rate drops for too long so we can sleep with a measure of peace. Her breathing is still concerning, but she hasn't declined, so for now we simply watch and listen and thank God for machines that can be our eyes and ears. She's not able to coordinate to eat much by mouth anymore, so we're very grateful for the ease of a feeding tube to keep her sweet checks chubby. She is also rarely awake, but then she'll suddenly surprise us and blink her eyes a few times and appear to be checking us out. Of course this means we drop everything we're doing and all descend to ooh and aaahh until she goes back to sleep. 

Matt leaves this afternoon for New Orleans for an annual work conference, where he will give a number of presentations....which means he's barely slept in the past three days. On the heels of his departure, my dear friend Abby will arrive from California to spend some snuggle time with Ava and keep me company over my birthday. Last week we welcomed Miss M, to live with us again too, so we're a full house of women for a while.

As you can tell, I won't be lonely while Matt's gone, but we still would ask for your prayers! 

*For protection for Matt while he's gone, and for blessed presentations. 

*For protection for the girls and I, along with Abby and Miss M. 

*Please pray specifically that Ava would remain stable and would not have any seizures. 

*For continued daily grace and wisdom to observe and rightly respond to Ava's breathing and feeding trouble. 

Thank you for faithfully carrying our family in your hearts. Hopefully I can post more pictures tomorrow. Ava gets cuter every day!


Barb said...

Rest assured my friend. The prayers will keep on coming. Love you all!

Anonymous said...

I think about you and your family every day. Your children are so lucky to have you, and you them.

Anonymous said...

I love the way you relay on prayer which humbles me and wakes me up from my absurd complains of the every day life. Blessings to your family