Thanks so much for your prayers and emails of encouragement! It means so much to us to know you're thinking of us on days like these. Elizabeth did beautifully today we arrived at 9am and finally left at 5pm, but all in all things went smoothly. As we anticipated, her procedure got pushed back and she finally got wheeled away at noon. The GI felt good about what he saw: increasingly scarred over veins in her esophagus (which are less at risk of rupturing and causing a life threatening bleed). He had to inject two which looked like they could bleed soon, but overall feels like we're "making progress". The long term plan is to continue doing an endoscopy with sclarotherapy every 4-6 weeks for 4-6 months in a row and then take a break for 6 months or so and repeat the cycle until her varices go away...most likely when she's in her early teens all the while, praying she doesn't have a bleed in the middle of all this and require us to go to plan B.
We've also had some new developments that we're still processing:
*Monday we learned that Elizabeth has conductive hearing loss in one or both ears and will need amplification (hearing aides) once we do further "ear specific" tests. Would you join us in praying for complete healing for Elizabeth's hearing by the next test on April 15th?
*It appears that Elizabeth sprained her ankle at some point this week! While we were at the hospital today they were able to do x-rays and an ultrasound to confirm that it's not a hairline fracture or a clot, so that's a relief, but the poor thing has been limping for 2 days and yet we have no idea how it happened!
*We've got 2 more appointments tomorrow and Matt and I have a conference call with a specialist on Saturday who might be able to give us some input on possible speech therapies for Elizabeth...so we'll see.
It was a long day, we're glad to be home and eager to see the end of this long week...
Blessings,
Sara
