Her chubby cheeks are kissable.
Her hair has a sweet curl that compels us to rub her head at every opportunity. Her breathing is raspy at times, which is a relief, since it means she's resting, breathing and still with us.
Her sisters bring her their "kiki's" and dollies and sing sweet songs to her. She sits with us most of the day, and sleeps near us at night.
We snuggle her whenever we have the urge. And through it all, she sleeps.
We live for the moments when she opens her eyes ever so slightly and we can pour into them all the love and affection and adoration we have for her.
These moments are fewer lately. And we treasure them all the more.
i just can't get over how beautiful she is. i love every single picture of her. matt & i pray and continue to hope. you are in our thoughts, prayers, and hopes every single day and we wait on God to pour His life into this sweet one. It is a journey for us as we seek God in this. Much love to you all.
ReplyDeleteOh Jude, Thank you. We treasure your prayers.
ReplyDeleteI am still checking this daily to see how she is doing. She is so precious. We also continue to pray for her and your family. Please let me know if you need anything.
ReplyDeleteStill praying for an Ava miracle. Wish we still lived across the street and not another state away. Love to you all.
ReplyDeleteKristin Moore
She is beautiful and you have a beautiful family so very full of love! She is so lucky to have you!
ReplyDeleteHi. My name is Liesa and I live in the same community as your Sister in Canada. I have been following your blog,and as someone else said the other day I also check it every day to see how you are all doing.I am so blessed by you sharing your story. I just wish I lived closer so that I could come and help you.I have shared your story with others and have sent many many prayers your way. May the Lord Bless and Keep you, May He Shine His Face upon you and Your Family Daily.
ReplyDeleteThank you all for your comments and prayers and for staying with us on this journey. We are carried along by God's grace and your encouragement and prayers. It is a beautiful work you're doing for us. Much love to you.
ReplyDeletei have been praying for you guys...as a newer parent, i now understand what heartbreak feels like when your child is sick. yours must be so much greater. as a medical person, i also understand how knowing too much can make it difficult to not go to negative spaces! i wish i was there to help you out and could meet all your fun girls. i will continue to pray hard for you, matt and sara. i am consistently in awe of your grace, courage, and faith. much love!!
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